University of Twente Student Theses
How Endometriosis Patients in the Netherlands Cope with Pain and Fatigue : Exploring Self-Management Experiences and Needs
Ross, J.C. (2025) How Endometriosis Patients in the Netherlands Cope with Pain and Fatigue : Exploring Self-Management Experiences and Needs.
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| Abstract: | Background:Endometriosis is a gynaecological condition characterised by varying pain and fatigue symptoms, which can significantly impact well-being. Treatment often overlooks contributing factors and psychological consequences. While self-management strategies may be helpful in these challenges, treatment guidelines in the Netherlands lack clear recommendations, and effective coping may require tailored support. Research on self-managing endometriosis-related pain and fatigue in the Netherlands is limited, highlighting a knowledge gap that this study aims to address. Methods: A mixed-methods design (online survey) was employed. Recruitment occurred through the Endometriosis Foundation. A total of 195 participants (age 18-64 years) with a self-reported diagnosis or suspicion of endometriosis were included in the analysis. Data analysis included descriptive statistics and thematic analysis. Results: Participants regarded endometriosis self-management as a personal journey to find effective strategies. Common strategies included physical activity, dietary changes, and balancing rest with activities. Primary support needs included accessible information on coping techniques (e.g., diet), peer support, and professional guidance (e.g., coaching), preferably via mobile apps. Needs and experiences concerning pain and fatigue were similar. Conclusion: This study advances understanding of coping with endometriosis-related pain and fatigue from the Dutch patient perspective. Patient self-awareness, experimentation, and the necessary resources for support should be facilitated. |
| Item Type: | Essay (Master) |
| Faculty: | BMS: Behavioural, Management and Social Sciences |
| Subject: | 77 psychology |
| Programme: | Psychology MSc (66604) |
| Link to this item: | https://purl.utwente.nl/essays/106460 |
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