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Applying Citizen Science in Conducting a Discrete Choice Experiment in Health Preference Research
Dikkenberg, I. van den (2025) Applying Citizen Science in Conducting a Discrete Choice Experiment in Health Preference Research.
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| Abstract: | Background: Citizens are increasingly taking active roles in medical research, known as citizens science, contributing to more patient-centred care. This is especially valuable in chronic conditions such as rheumatoid arthritis (RA), where experimental knowledge of patients has a great value. A Discrete Choice Experiment (DCE) is commonly used in health preference research, but citizens usually are limited involved in this method. Objective: This study investigates how citizens with rheumatoid arthritis engage with and experience their participation in conducting all steps of a Discrete Choice Experiment questionnaire for managing rheumatoid arthritis. Methods: Four co-researchers with RA participated in three online meetings. In the first meeting, co-researchers determined their roles and how to distribute the DCE-questionnaire. In the second meeting, they interpreted the analysed results and in the third meeting, they evaluated the co-working process. The qualitative data from meeting transcripts and reflection questionnaires were thematically analysed using the UK Standards for Public Involvement and the Involvement Matrix. Quantitative data from DCE-questionnaire responses were statistically analysed. Results: The co-researchers fulfilled different roles, from listener to partner. Their involvement increased the total number of responses and contributed to meaningful interpretations of the DCE results. They experienced the collaboration as meaningful, educational and equal. Conclusion: This study shows that it is possible and valuable to actively involve citizens in all steps of a DCE. Both citizens and researchers experienced the co-working process as positive and valuable. |
| Item Type: | Essay (Master) |
| Faculty: | BMS: Behavioural, Management and Social Sciences |
| Programme: | Health Sciences MSc (66851) |
| Link to this item: | https://purl.utwente.nl/essays/107783 |
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