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Care for cancer; psychosociale ondersteuning en een gidsrol in het zorgaanbod door oncologieverpleegkundigen in de thuissituatie. Een explorerend evaluatieonderzoek

Hoogendoorn, Martina (2012) Care for cancer; psychosociale ondersteuning en een gidsrol in het zorgaanbod door oncologieverpleegkundigen in de thuissituatie. Een explorerend evaluatieonderzoek.

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Abstract:Introduction: Cancer may cause problems in five life domains; emotional, physical, practical, social and spiritual. In spite of the wide range of caregivers available for people with cancer, there are barriers for finding the right caregiver for individual problems and there may still be unmet needs. A new type of intervention to cover these problems is being offered by Care for cancer [CFC]. CFC aims at offering a home visit intervention, providing basic psychosocial care in the five life domains and at guiding patients in the offer of available caregivers. CFC’s intervention is delivered by experienced oncology nurses. Three research questions were examined; (1) What kind of people seek support at CFC? (2) How is support from CFC experienced by clients? and (3) How and to what extent can CFC support people with cancer? Methods: According to mixed methods, three sub-studies were carried out. (1) A retrospective study of data from CFC’s electronic patient record has been conducted (n=328). Frequencies were calculated for demographics, diagnosis, the amount of received consultations, and the reasons for asking help. (2) Data collected in 47 evaluation forms were analyzed to draw frequencies for the way people got in touch with CFC, the moment of support, clarity about what CFC could offer, the amount of consultations being offered and about perceived support. (3) 15 semi-structured, face-to-face interviews were carried out among ex-clients. Questions were asked about expectations prior to the consultations and about if, and how support was provided for the life domains. Furthermore questions about positive and negative experiences with CFC were posed as well as questions about recommendations for CFC. Results: Especially women between 40 en 80 years, with breast or long cancer who are redirected to CFC by their hospital got in touch with CFC. Having difficulties coping with emotions was the most common reason for turning to CFC for help, however reasons could also arise from other life domains. If, and how CFC could help was usually unclear for clients until the first consultation. Reactions were mainly positive and CFC supported respondents in every life domain, especially in the physical and emotional domain. Clients were supported by clarification and normalization of problems, gaining information, being coached and sometimes by receiving guidance. Being informed and coached were perceived as the most preferred intervention, as well as listening, a part of every function. Conclusion and implications: CFC offers a helpful intervention. The type of care being offered by CFC is a valuable addition to existing care because CFC offers home-visits by experienced oncology nurses, because the intervention is readily available and because sufficient time is available to talk in individual meetings. Since clients do not have particular expectations from CFC, it is recommended that CFC should communicate their goals more clearly to their clients so that both intervention goals can be met, especially according to guiding people with cancer. Experimental follow-up research is recommended to investigate if the intervention can affect quality of life and distress.
Item Type:Essay (Master)
Care for cancer
Faculty:BMS: Behavioural, Management and Social Sciences
Subject:77 psychology
Programme:Psychology MSc (66604)
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