Involvement of young patients suffering from juvenile idiopathic arthritis in decision-making processes referring to their disease

Cordesmeyer, Caroline (2013) Involvement of young patients suffering from juvenile idiopathic arthritis in decision-making processes referring to their disease.

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Abstract:Title: Involvement of young patients suffering from juvenile idiopathic arthritis (JIA) in decision-making processes referring to their disease. Objective: This study examines the perceptions and preferences of young patients with juvenile idiopathic arthritis and possible influencing factors (age, gender, severity of disease, skills in shared decision-making (SDM)) referring to the involvement in medical decision-making (DM) to improve the process of decision-making in pediatric medical care. Method: 58 patients of the pediatric rheumatology section of the St. Josef-Stift Sendenhorst were invited (52 took part) to complete a questionnaire. This questionnaire consists of demographic questions and adaptations of existing versions of the Control Preference Scale (CPS), the Decision-Making Involvement Scale (DMIS), the Perceived Efficacy in Patient-Physician Interactions (PEPPI) scale and the Childhood Health Assessment Questionnaire (CHAQ). Results: Patients‟ preference and perception do not seem to differ significantly. This is consistent with the fact that 85% of the questioned patients are satisfied or very satisfied with the way of decision-making. Furthermore no significant differences were found referring to the four possibly influencing factors. The p-values of a X² test range from 0.087 to 0.861. The results for communication with parents was 2.85 (SD=0.064) on average and with 2.78 (SD=0.63) the rheumatologist on a scale from 0 to 4. With a one-way ANOVA a relationship between the results of the PEPPI and all subscales of the DMIS was found with 3.299≤F≤18.172 (df=1) and p<0.045. So the better the skills in shared decision-making, the more involvement. Conclusion: Although small differences were found between the groups of age, gender, severity of disease and skills in shared decision-making, the overall satisfaction of the young patients is very high. The amount of participation in comparison of the four possibly influencing factors is mainly determined by skills in shared decision-making.
Item Type:Essay (Bachelor)
Faculty:BMS: Behavioural, Management and Social Sciences
Subject:77 psychology
Programme:Psychology BSc (56604)
Link to this item:http://purl.utwente.nl/essays/63195
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