De relevantie van de PROMIS domeinen bij COPD patiënten

Groen, L.C. (2013) De relevantie van de PROMIS domeinen bij COPD patiënten.

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Abstract:Objective: In this study quantitative and qualitative methods were used to assess 16 domains of the generic instrument PROMIS, a network of item-banks consisting of series of questions measuring concepts of quality of life. The study focused on the relevance of these domains for patients diagnosed with COPD. The research question being investigated was: “Which PROMIS domains do COPD patients consider most relevant to their COPD?” Differences between sexes and among severity levels were investigated. Method: A number of 21 patients with COPD, with an average age of 66.6 years participated in this study. They were interviewed in one of two hospitals: the Sint Franciscus Gasthuis in Rotterdam or the Medisch Spectrum Twente in Enschede. A pre-established interview scheme was used. At first, patients were asked to answer a few open questions, secondly they had to choose five from 16 cards featuring PROMIS domains, which they deemed most relevant with respect to their COPD. Results: The most frequently chosen domains were ‘ability to take part in social roles and activities’, ‘practical support’, ‘fatigue’, ‘emotional support’ and ‘physical functioning’. The domains ‘ability to take part in social roles and activities’, ‘fatigue’ and ‘practical support’ were most frequently chosen by men. The domains ‘practical support’, ‘company’ and ‘sleeping disorders’ were most often chosen by women. Patients with a mild severity of COPD (GOLD I/II) were more likely to choose the domains ‘ability to take part in social roles and activities’, ‘physical functioning’ and ‘sleeping disorders’. The domains most frequently chosen by patients with a more severe variant of COPD (GOLD III/IV) were ‘practical support’, ‘company’ and ‘fatigue’. Conclusion: The PROMIS domains ‘ability to take part in social roles and activities’, ‘practical support’, ‘fatigue’ and ‘physical functioning’were found to be most relevant with respect to COPD. Furthermore women seemed more likely to experience domains in the category ‘Social contact’ to be more relevant compared to men. Patients with more severe forms of COPD seemed more likely to experience domains in the category ‘Social contact’, ‘Fatigue and sleep’ and ‘Physical functioning’ to be more relevant compared to patients with less severe forms of COPD.
Item Type:Essay (Bachelor)
Faculty:BMS: Behavioural, Management and Social Sciences
Subject:77 psychology
Programme:Psychology BSc (56604)
Link to this item:http://purl.utwente.nl/essays/64074
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