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The correlates of the health-related quality of life of paediatric patients with diabetes type 1

Winter, C. (2013) The correlates of the health-related quality of life of paediatric patients with diabetes type 1.

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Abstract:Objective: The objective of this study was to investigate the correlates of the health-related quality of life (HRQOL) of paediatric patients with diabetes type 1. The level of congruence between the patients' self-reports and the parents' proxy reports on the patients' HRQOL was examined, too. In addition, this study investigated changes in HRQOL and self-efficacy over a period of two years (2011 vs 2013) by paediatric patients who have participated in a diabetes aftercare project, called DiNa. Methods: Data were collected at the paediatric department of the St. Agnes-Hospital, Bocholt, Germany. Next to HRQOL of the patients, self-efficacy, stress and stress coping, quality of the communication between the patients and their parents, quality of life of the parents, treatment adherence and intellectual ability were examined. Furthermore clinical measures, financial problems of the family and school problems were investigated. In total, 94 diabetic patients, aged between 8 to 16, participated in this study. A sample of 23 patients could be examined for changes in HRQOL and self-efficacy over a period of two years. Results: Results disclosed that metabolic control, treatment adherence, quality of the communication between patients and parents, financial problems and school problems were especially associated with the psychological and social aspects-in contrast to the physical aspect- of the HRQOL. In addition, avoidant coping proved to be a salient factor in predicting the HRQOL. This study also found that metabolic control mediates the association between the communication between patients and parents and two dimensions of the HRQOL, namely family and school. In regard to the level of congruence between the paediatric patients' self-reports and parents' proxy reports on the patients' quality of life, agreement was found to be low and assessments varied between different aspects. Parents overestimated the overall HRQOL, psychological well-being and the quality with friends. However, self-esteem and the quality at school were significantly underestimated. Parents reports achieved slightly higher reliability, though. Considering the change of the HRQOL over a period of two years, psychological well-being and the quality in family were significantly higher evaluated in 2013 than in 2011. However, the quality with friends was lower rated in 2013 in contrast to 2011. Self-efficacy was significantly higher judged in 2013 than in 2011. Conclusion: Results indicate the importance of psychosocial support and the promotion of positive coping strategies for paediatric patients with diabetes type 1. Neither self-reports nor proxy-reports on HRQOL of paediatric patients with diabetes type 1 seem to be entirely superior. DiNa seems to be a useful project in strengthening the psychosocial development of the paediatric patients.
Item Type:Essay (Master)
Faculty:BMS: Behavioural, Management and Social Sciences
Subject:77 psychology
Programme:Psychology MSc (66604)
Link to this item:http://purl.utwente.nl/essays/64614
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