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Zorg voor partners van CVA-patiënten – een kwalitatief onderzoek naar de ervaring van partners van CVA-patiënten met ‘Houvast voor elkaar’

Luth, Rinske (2015) Zorg voor partners van CVA-patiënten – een kwalitatief onderzoek naar de ervaring van partners van CVA-patiënten met ‘Houvast voor elkaar’.

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Abstract:In 2011 approximately 26.000 Dutch had their first stroke. One-third died and for the others, the impact differs. However, not only the patient suffers the consequences. Research has shown that, due to the long-term and intensive care, the main caregiver at home - the partner - experiences caregiver burden. The main factor of caregiver burden is the emotional one, including anxiety and depression. Several interventions have been designed and tested to counteract caregiver burden. Several studies have reported short-term positive results. However, of most studies it is not known whether they provide long-term positive effects. In addition, most approaches differ and most lack a theoretical framework. The few studies that mention a framework used second wave behaviour therapies. Meanwhile, third wave behavioural therapies, such as ACT and mindfulness, have shown promising results with regard to the prevention of symptoms of psychological suffering. An intervention that implemented these therapies is ‘Houvast, voor elkaar’. This online program is designed for partners of cancer patients who face the same caregiver burden as partners of stroke patients. In this study, the first six chapters of ‘Houvast, voor elkaar’ were presented in a book version to nine partners of stroke patients. They were recruited by social workers of rehabilitation center ‘de Vogellanden’ in Zwolle. Both the partners and social workers were asked to review the book and think about suggestions to make it fit their situation. They are interviewed about their experiences. Afterwards the interviews were transcribed and analysed to answer the question: ‘How do partners of stroke patients experience the various components of the online intervention ‘Houvast, voor elkaar’ and how should the intervention be modified to suit this target group?’ Respondents were exited and particularly positive about the first lesson ‘how to deal with your emotions’. Lesson four, about values in life and relationship, was also appreciated. Respondents even benefited from this lesson because it helped them see what they still had and what they found important. The part that was mostly missed was attention to cognitive problems and personality changes that are often characteristic of a stroke. Should the course get adjusted for this population, these parts have to be included. The respondents have committed themselves beyond expectations and did not only read the book, but also completed the assignments. The majority was enthusiastic and even indicated that they benefited from it. The professionals were enthusiastic as well and indicated that the book could give recognition to the fact that not only the patient suffers, but the partner as well. Further research is needed to determine whether the course, in modified form, affects caregiver burden experienced by partners of stroke patients.
Item Type:Essay (Master)
Faculty:BMS: Behavioural, Management and Social Sciences
Subject:77 psychology
Programme:Psychology MSc (66604)
Link to this item:http://purl.utwente.nl/essays/68658
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