University of Twente Student Theses


Prevention of Suddent Infant Death Syndrome : eHealth intervention design to support the current health promotion and education about SIDS

Ocal, Gulsen (2018) Prevention of Suddent Infant Death Syndrome : eHealth intervention design to support the current health promotion and education about SIDS.

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Abstract:Background: Sudden Infant Death Syndrome (SIDS) is the sudden unexpected death of a seemingly healthy child older than one week but younger than one year of age, usually during sleep, that cannot be explained after a postmortem evaluation. The most important modifiable risk factors are stomach sleeping, smoking, use of wrong equipment in bed such as soft bedding, and parental bed sharing. Currently, the incidence of SIDS is very low in The Netherlands and the idea can be assumed by parents that prevention is no longer necessary or due to reduced awareness of cot death, risky behaviors will be performed again in the care of their infant. The aim of this study is to examine whether and how an eHealth intervention can be used to support the current health education about SIDS by understanding the perception of the end-users concerning the current health education. The research question is: What are the experiences and expectations of prospective parents, parents with an infant between 0 and 12 months old, and healthcare professionals with the current health education about SIDS and towards health education support to prevent SIDS through an eHealth intervention? Methods: The study is executed according to the CeHRes roadmap, the first two phases contextual inquiry and the value specification are followed. A qualitative study through semi-structured interviews was performed with primary end-users (N=10), namely (prospective) parents (N=1) and parents with an infant between 0 and 12 months old (N=9), and secondary end-users (N=7), namely a youth healthcare physician (N=1), youth healthcare nurses (N=2), maternity nurses (N=2) and midwives (N=2). The interviews were inductive and deductive coded in Atlas.ti. Subsequently, from the interview the expected added values concerning a possible eHealth intervention were determined and translated into requirements by using the approach of Van Velsen. The persona descriptions of the primary end-users are developed by using the approach of Le Rouge. Results: The barriers that parents are currently facing are: too late provided information about SIDS, generalized health education, insufficient / lack of detailed information and unattractiveness. Their needs of the parents concerning the current way of health education are easy to understand, detailed/relevant health education, provided in a more attractive and personalized way, without replacing the current health education. The healthcare professionals perceived language and cultural differences as important barriers in the current health education. Unattractive and anxiety provoking health education were also mentioned as barriers. The healthcare professionals indicated that the cultural and language barriers should be solved, besides they needed visual and non-verbal health education. The expectations from an eHealth intervention are formulated as values. The values of parents concerning an eHealth are that is should be easy to understand, easy to use and affordable. Furthermore it should be able to raise more awareness/increase the knowledge of the users. The health education provided by an eHealth should also be personalized and provide relevant and detailed information. The values of the healthcare professionals correspond with the values of the parents. They mentioned that the eHealth should also stimulate empowerment, improve patient-professional communication, and be easy to integrate into their current work routine. From these values, 16 requirements are formulated. Subsequently, three initial personas descriptions are designed, based on the interview. The personas were differing in the motivation and domain specific knowledge of the primary end-users. Conclusion: Taking the needs and values of the primary and secondary end-users into account, it can be concluded that eHealth technology could meet the needs of the end-users, solve certain perceived barriers and fit into the current way of health education as a supportive tool. There seems to be space for blended care in which an eHealth intervention could support the current way of health education about SIDS. Possible interventions could be mHealth or an e-Learning module. However, to conclude this, further research verifying the results needs to be performed.
Item Type:Essay (Master)
Faculty:TNW: Science and Technology
Subject:01 general works, 42 biology, 44 medicine, 50 technical science in general, 77 psychology, 81 education, teaching
Programme:Health Sciences MSc (66851)
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