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How to effectively communicate brain stem cancer to a child patient.

Hillebrand, Manouk (2021) How to effectively communicate brain stem cancer to a child patient.

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Abstract:This research aims to discover how to effectively communicate difficult medical information to child patients diagnosed with a type of brainstem cancer called Diffuse Intrinsic Pontine Glioma (DIPG). It investigated whether child patient communication can be supported by using a child-friendly information tool. Communicating with child patients about DIPG and its corresponding treatments is difficult due to each child having a different age, cultural background, cognitive development level and emotional sensitivity. To support communication, an interactive information tool was created which is called the Badge Buddy. The Badge Buddy provides information about different DIPG procedures and treatments to child patients through animated information videos that can be accessed via scanning the QR-codes on badges with a smartphone. These badges can be used by paediatricians to inform child patients before treatments and a child patient can earn the badge after they have finished a particular treatment. The Badge Buddy aims to additionally provide support to child patients and make them feel empowered by being able to compliment them on the badges they have earned. Badge Buddy was positively received by the Tobias Sybesma Foundation and healthcare professionals at the Princes Maxima Centrum. They think Badge Buddy can support the current practice of child patient communication well as the animated videos are tailored to the child patients in terms of language, visuals and explanations. The compliments feature of the Badge Buddy gives child patients is welcomed due to its ability to boost motivation and confidence among child patients. Badge Buddy will be further developed within the development domain to transform it from prototype to full-fledge product.
Item Type:Essay (Bachelor)
Clients:
Tobias Sybesma Foundation, The Netherlands
Faculty:EEMCS: Electrical Engineering, Mathematics and Computer Science
Subject:50 technical science in general, 80 pedagogy, 81 education, teaching
Programme:Creative Technology BSc (50447)
Awards:CreaTe Best GP Award 2021
Link to this item:http://purl.utwente.nl/essays/87499
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