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Towards value sensitive dynamic e-consent in eHealth solutions

Artar, U. (2021) Towards value sensitive dynamic e-consent in eHealth solutions.

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Abstract:Current traditional informed e-consent is seen as a one-time agreement for participating in a research project over a limited period of time. Within the context of Citizen Science, research is done in a significantly different way, with a lot more variables in play, which makes it more complex, thus, traditional informed e-consent is not a good approach for it. A new solution is necessary that is more dynamic and allows for more personalisation as to fit all the data usage contexts of Citizen Science. A prototype for a solution combining dynamic e-consent with user values, needs and expectations was developed. This implementation has been tested twice, using two different prototypes. The results showed a very positive reception of implementing dynamic consent and a good indication that combining it with a user-centred focus is beneficial. Moreover, the research done shows that such a solution can work and a good design for it would most likely implement a focus on user values, needs and expectations. There is still room for improvement, so such systems should be explored more in research perhaps with a particular focus on personification. Regardless, this thesis provides a good first step in the relative infancy of such systems.
Item Type:Essay (Bachelor)
Faculty:EEMCS: Electrical Engineering, Mathematics and Computer Science
Programme:Creative Technology BSc (50447)
Link to this item:http://purl.utwente.nl/essays/88462
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