University of Twente Student Theses
The role of motivations in patient engagement in research: the case of rheumatoid arthritis (RA) patients participating in RA research on an online crowdsourcing intervention called Share Data Valley
Coenen, T. (2022) The role of motivations in patient engagement in research: the case of rheumatoid arthritis (RA) patients participating in RA research on an online crowdsourcing intervention called Share Data Valley.
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| Abstract: | Over the past few decades, patient engagement in research has risen to prominence in healthcare contexts. One of the challenges of patient engagement in research is drawing patients into research and maintaining consistent patient participation. A concept that plays an important role in patient engagement is that of motivation. Knowing the role motivations have in (long-term) engaging patients, the goal of this interview study was to explore the role of motivation in the context of an online crowdsourcing intervention called Share Data Valley (SDV), designed to shape a collaborative research project between researchers of TOPFIT Citizenlab and patients with rheumatoid arthritis (RA). To explore the motivations of the participants (patients with RA) to use SDV as well as their opinions on the different features and aspects of SDV, semi-structured interviews were conducted with the participants (n=10). From this motivational perspective, this interview study emphasizes the need for researchers of TOPFIT Citizenlab and researchers organizing other patient engaged research projects to develop engagement strategies that lend itself to the specific motivations of patients, as well emphasizing the need for these researchers to think about different design strategies to fit with the individual needs and wishes of patients. |
| Item Type: | Essay (Master) |
| Faculty: | BMS: Behavioural, Management and Social Sciences |
| Subject: | 77 psychology |
| Programme: | Psychology MSc (66604) |
| Link to this item: | https://purl.utwente.nl/essays/89833 |
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