University of Twente Student Theses


Using Participatory Action Research to Redirect Chronic Bothersome Tinnitus Research and Treatment - An Interview Study

Kajüter, Julia (2023) Using Participatory Action Research to Redirect Chronic Bothersome Tinnitus Research and Treatment - An Interview Study.

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Abstract:Chronic bothersome tinnitus is a significantly impairing condition. Despite its high prevalence, current research and treatment practices remain mostly ineffective. The complexity of such professional issues is high, whereby connected stakeholder perspectives vary. Currently, there is only limitedly available research assessing, comparing, and stipulating different stakeholder priorities to redirect professional practices. This qualitative interview study used the first stage of the participatory action research approach to discover and define different stakeholder perspectives on ways of redirecting chronic bothersome tinnitus research and treatment to improve patients´ conditions while respecting realistic limitations. Semi-structured online interviews including five participants (two patients, two researchers and medical specialists, one general practitioner) were conducted. Deductive grounded theory and the constant comparative method were used for data analysis. Four categories for research adaptations ((I) patient involvement; (II) more cure less coping research; (III) funding; (IV) publication), and six categories for treatment adaptations ((I) professional support; (II) patient involvement; (III) interdisciplinarity; (IV) professional tinnitus education; (V) clinical treatment guidelines; (VI) psychological treatment) were identified. Participants were found to hold partly similar priorities such as increasing pathophysiological and cure research. Differing ideas or dilemmas between patient and professional needs, and their limitations were addressed too. For instance, patients aimed for increasing their involvement in professional practices, whereby professionals argued that the excessive focus on patients´ conditions could reduce their chances of habituation. Particularly facilitating communication between and within stakeholder groups by increasing patient involvement, interdisciplinarity in practices, and reducing barriers to receiving psychological treatment were seen as essential factors for improving tinnitus practices.
Item Type:Essay (Bachelor)
Faculty:BMS: Behavioural, Management and Social Sciences
Programme:Psychology BSc (56604)
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