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Child death review in Oost-Nederland - Een vergelijking met de huidige werkwijze rondom kindersterfte

Petter, J. (2011) Child death review in Oost-Nederland - Een vergelijking met de huidige werkwijze rondom kindersterfte.

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Abstract:Background In 1978 a method which focuses on systematic and multidisciplinary research of child deaths had been developed in the United States. This method is called Child Death Review. The primary goal of Child Death Review teams is prevention of child death. To reach this, causes and circumstances of each deceased child are mapped. This methodology of Child Death Review is practiced in the United States, the United Kingdom and some other countries. In the Netherlands such a method does not exist yet. At this moment a pilot is carried out in the Easter Netherlands. With this pilot the researchers check the possibility to position Child Death Review teams in the Netherlands. Four goals are aimed at: to improve the causes of death statistics, to get insight in avoidable factors of child death, to make the translation to possible interventions and to offer grief counseling to relatives. The procedures of Child Death Review in the Eastern Netherlands exists of a regional Child Death Review team (CDR), who analyze all cases of child death after the perinatal period. In the future, when besides the duty to report comes into force the second part of the Nader Onderzoek DoodsOorzaak (NODO) legislation, a sort of Rapid Response (RR) will be applied in cases of inexplicable death. Research question To be able to measure the returns of Child Death Review, a comparison with the current procedures of child death is necessary. Hereby is decided to what extent the current situation pays attention to the goals of Child Death Review. The subsequent research question is: ‘To what extent do the current procedures about child death in Overijssel and the Achterhoek correspond with the four goals of Child Death Review: improving the causes of death statistics, getting insight in avoidable factors of child death, making the translation to possible interventions and offering grief counseling to relatives?’. Methods This research was qualitative and explorative. The current procedures about child death could be written down in protocols, guidelines and a variety of other papers. These documents were retrieved from all mapped actors. Information of relevant actors who do not have documents at their proposal in which the procedures about child death are written down, has been obtained by means of interviews. On the basis of the Child Death Review protocol in the United Kingdom and the Child Death Review protocol in the pilot in Eastern Netherlands a scorecard has been developed which makes the four goals measureable. Hereby a distinction has been made between the RR and CDR. The criteria on the scorecard could be answered with ‘yes’, ‘limited’ and ‘no’. The data gathering yielded 22 protocols and interview reports, which had been analyzed on the basis of the scorecard. From the results of the analysis the extent of correspondence was gathered between the current procedures of child death and the procedures of Child Death Review. Results Protocols which pay attention to improve the causes of death statistics correspond with the RR. To every criterion with the RR is paid attention in at least one protocol. The ‘Werkinstructie Melding overleden minderjarigen’ corresponds most with RR. As for CDR attention is mainly paid to the criterion ‘results of the review are passed on to a national point’. For all other criteria with CDR attention is very limited. Except the Perinatale Audit Nederland no protocol primarily aims at getting insight in avoidable factors of child death. Despite that some protocols correspond limitary with the criteria of both the RR and CDR. These mainly are protocols who focus at making the translation to possible interventions. Considering the third goal, in the current situation attention is especially paid to long term prevention by Veilig Verkeer Nederland, Consument en Veiligheid, de Onderzoekraad voor Veiligheid en de Perinatale Audit Nederland. Only the Perinatale Audit Nederland primarily directs at child death, the other agencies focus more at accidents and unsafe situations. GGZ agencies focus more at direct prevention, however this direct prevention is internal and focuses on non natural death. It is also about adult death, not only child death. When looking after offering grief counseling to relatives in both the RR and CDR, the protocol ‘Overlijden van een kind’ and the ‘Protocol Grootschalig Seksueel Misbruik’ (GSM-protocol) correspond most with the criteria. However, this last protocol is rarely used in cases of child death and was revised at the moment of this research. Most protocols pay attention to the RR, however no protocol corresponds fully with all the criteria of the RR. The GGD and JGZ, with the GSM-protocol and the ‘JGZ-Richtlijn Begeleiding gezin bij overlijden kind’, correspond well with CDR, especially the GSM-protocol. Support and counseling of professionals, administrative finishing in the form of deleting the data of the deceased child and an evaluation of the procedures and the improvements is written down in the current situation, but misses in procedures of Child Death Review. Conclusions The current procedures on child death in the Eastern Netherlands are fragmented and no one of the protocols corresponds completely with all goals of Child Death Review, consisting of the RR and CDR. However, some actors correspond with one of both parts of Child Death Review. The current procedures correspond with improving the causes of death statistics in the RR and offering grief counseling to relatives in the CDR to a reasonable extent. The ‘NVK – Handelingsprotocol na wiegendood’ and the Perinatale Audit Nederland contain many aspects of Child Death Review in the Eastern Netherlands. However, both focus at a smaller target group than the target group which is aimed at with Child Death Review. The ‘NVK – Handelingsprotocol na wiegendood’ focuses on children up to two years who die suddenly and unexpected and the Perinatale Audit Nederland focuses on children who died in the perinatal period. Moreover, both do not focus on all four goals of Child Death Review.
Item Type:Essay
Faculty:BMS: Behavioural, Management and Social Sciences
Subject:88 social and public administration
Programme:Health Sciences BSc (56851)
Link to this item:http://purl.utwente.nl/essays/62733
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