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Dementia, how we forget about ourselves and what we can do about it - the evaluation of an online life story book

Pieper, S.D. (2017) Dementia, how we forget about ourselves and what we can do about it - the evaluation of an online life story book.

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Abstract:Purpose – The purpose of the study is to report on a process evaluation of the making process of an online life story book (OLSB). The book has been created by a patient that has been diagnosed with beginning dementia, his informal caregiver, that at the same time is his wife, a trained volunteer from the University of Twente. The process has been accompanied by a health care professional from the Dutch institution ‘Livio’ from a more distant point of view. It is the aim of the study to analyze the content of one life story book and look at motivations, point of view and considerations of the participant, and other stakeholders that have been involved in creating the book. The process evaluation will be carried out as part of a RCT research that the University of Twente is carrying out. Design/Methodology/Approach – The study has been separated into two major parts. First, three interviews have been held with all people that have been involved in the creation of the live story book. Second, a content analysis of the online life story book has been applied to get an insight on how the book is filled. Findings – The findings of the interviews reveal a largely positive attitude towards the making process of the life story book. The findings of the content analysis provide an insight in the personal life of the patient. Discussion & Conclusion – The process evaluation showed that the OLSB intervention enhanced the relationship between all participant and presented an added value for all people involved. Especially the fostering of mutual understanding among each other is an important achievement that is necessary in a world where society is aging and where the number of people with dementia dramatically increases. The shift to a more person-centred approach is, according to literature, the most promising approach to address the changes and to make sure that quality care can be delivered to patients. However, as earlier implied, research on life story books is scarce and it is therefore crucial to further investigate its use. Particularly research on online versions of life story books is rare in present-day literature, what makes this study an important contribution to present and future research.
Item Type:Essay (Bachelor)
Faculty:BMS: Behavioural, Management and Social Sciences
Subject:77 psychology
Programme:Psychology BSc (56604)
Link to this item:http://purl.utwente.nl/essays/72850
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